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A NETWORK OF YOUNG MSA-RESERACHERS

 

We strive to develop YAMSA e.V. into an international network of young MSA-reserachers. To continue this idea, we presented our initiative at the annual meeting of the German Neurological Society. Moreover, using the channels of the "Young Neurologists" we would like to improve our outreach and recruit new researchers. The Young Neurologists are the youth organisation of the German Neurological Society.

THE HARDSHIP OF MSA PATIENTS

 

Parkinson's and Multiple-System-Atrophy (MSA) are neurodegenerative diseases belonging to the group of alpha-synucleinopathies. Currently there are no effective therapies to delay or stop their progression. To make matters worse, drugs used to treat symptoms of Parkinson's disease do not affect MSA.  Moreover, the progression rate is much faster for MSA than for Parkinson's. Hence, MSA patients are living in an even more dire state than Parkinson patients.

© Eliana Nachman

UNITED IN THE FIGHT AGAINST MSA

 

Due to the rarity of MSA, only a multicentric approach is promising. There are 13 clinics  participating in our first reserach project:

- Beelitz clinics

- University hospital Dresden

- University hospital Düsseldorf

- University hospital Essen

- University hosptial Göttingen

- University hospital Heidelberg

- University hospital Jena

- University hospital Leipzig

- University hospital Marburg

- University hospital Münster

- University hospital Munich, LMU Munich
- University Hospital Regensburg

- University Hospital Rostock

 

WHAT DOES YAMSA WANT TO ACHIEVE?

 

According to our statutes, we as YAMSA e.V., want to promote and carry out more multicentric studies - our current project functions as a starting point for our fight against MSA. One of our long-term goals is  to help create a national MSA patient registry.  We want enhance public awareness on MSA which does not receive sufficient attention in research or in the public eye.

YOUNG ALLIANCE AGAINST MULTIPLE SYSTEM ATROPHY, YAMSA 

ABOUT US
OUR RESEARCH

OUR SUPPORTER

HILDE-ULRICHS-STIFTUNG FOR PARKINSON RESEARCH


The Hilde-Ulrichs-Foundation for research on Parkinson's disease is a Germany-wide point of contact for patients with Parkinson's disease, providing independent counseling and information about how to cope with the disease. It is the first private charitable foundation that supports the development of non-medical treatments for Parkinson's disease. Biannualy, the foundation gives out at research price valued at 10,000 €. Moreover, it supports scientific research and engages in education about Parkinson's. The foundation was founded by Hermann Terweiden at the first World Parkinson Day on April, 11th 1997. It is named after Hilde Ulrichs, Terweiden's partner, who died from MSA.

WE ARE INTERESTED IN THE PATIENTS' OPINIONS

NEWS

How should future therapies and clinical studies for patients with MSA and Parkinson's be designed?

How do patients with MSA and Parkinson's disease dream?

What reasons influence a patient with MSA or Parkinson's disease to participate in a clinical study?

IF YOU'RE A PATIENT SUFFERING FROM MSA...

and you would like to participate in our survey - get in touch.

and would like to get more information on our work - subscribe to our newsletter.

SUPPORT OUR PROJECTS

DONATIONS

As a charitable foundation, we rely on donations to carry out our projects. Non of our members are paid for their help, they all work on an honorary basis. We are happy to inform you about the options to support us in a personal conversation. Just send us a message at info@yamsa.net. All donations are tax-deductible and we can issue donation receipts.

Our Donations Account:


Commerzbank Zwickau

IBAN: DE70 8704 0000 0707 1038 00

BIC: COBADEFFXXX

PARTICIPATING

If you would like to participate in our projects, as a researcher (any background), as a student or as a clinician, get in touch at info@yamsa.net. We are always looking for new members for our network because this is one of our overarching goals. We're confident that only together we can advance the research into MSA and therefore getting closer to reduce the burden of patients. To participate, you don't need to be a member of our foundation. 



BECOMING A MEMBER

Our projects rely on a strong network of MSA-Researchers. We are always looking for new members to expand this network and we're offering two options:


- as an active member (members that would like to take over responsibilities within YAMSA e.V.)


- as a supporting member (members that would like to support the foundation financially)


Our membership application can be found here.


CONNECT WITH US

UNSERE HOMEPAGE AUF DEUTSCH

https://www.yamsa.de

© Young Alliance Against Multiple System Atrophy, YAMSA 2020

OUR SUPPORTER

OUR DONATIONS ACCOUNT


Commerzbank Zwickau

IBAN: DE70 8704 0000 0707 1038 00

BIC: COBADEFFXXX