If you would like to become a member of our foundation, fill in the membership application and send a signed copy to firstname.lastname@example.org. Our project relies on a large network and we are therefore always looking for new members.
If you would like to get in touch with us, just fill in the contact form or send us an email. We are happy about any kind of feedback or ideas.
If you are a patient and would like to participate in our study, just send us a message. Alternatively, you can also make an appointment directly at the neurological outpatient clinics of any of our participating clinics.
Welcome to our website.
The protection of your personal information is very important to us. We would like to explain below which data we process when and for what purpose.
If you use this website, various personal data will be collected. Personal information is information that personally identifies you.
1 - Mandatory Information and General Information
The website operator takes your privacy very seriously and will treat your personal information confidentially and in accordance with the law.
Keep in mind that data transmission on the Internet can generally be subject to security vulnerabilities. Full protection against access by strangers is not possible.
Responsible entity is the natural or legal person who, alone or in concert with others, decides on the purposes and means of processing personal data (such as names, e-mail addresses, etc.) as follows:
Young Alliance Against Multiple System Atrophy, YAMSA
E-Mail: info (at) yamsa.de
Data collection on this website
Who is responsible for the data collection on this website?
The data processing on this website is carried out by the website operator. Its contact details can be found in the imprint of this website.
How do we collect your data?
One way of how your data will be collected, is when you give it to us. This may be e.g. data that you enter in a contact form. Other data that is collected automatically when visiting the website through our IT systems. These are above all technical data (for example Internet browser, operating system or time of the page request). The collection of this data is automatic as soon as you enter our website.
What do we use your data for?
Part of the data is collected to ensure a flawless provision of the website. Other data can be used to analyze your user behavior. What rights do you have regarding your data? At any time you have the right to obtain free information about the origin, recipient and purpose of your stored personal data. You also have a right to request the correction, blocking or deletion of this data. For this purpose as well as for further questions about data protection you can contact us at any time at the address given in the imprint. Furthermore, you have a right of appeal to the competent supervisory authority.
Revocation of your consent to data processing
Many data processing operations are only possible with your express consent. You can revoke an existing consent at any time. An informal message by e-mail to us is sufficient. The legality of the data processing carried out until the revocation remains unaffected by the revocation.
Right of appeal to the supervisory authority
In the case of violations of data protection law, the person concerned has the right of appeal to the competent supervisory authority. Responsible supervisory authority in data protection questions is the state data protection officer of the federal state in which we are located (Baden-Württemberg, Germany).
A list of data protection officers and their contact details can be found on the following link:
Right to data
You have the right to have data that we process on the basis of your consent automatically handed over to you or to a third party in a standard, machine-readable format. If you require the direct transfer of data to another person in charge, this will only be done to the extent technically feasible.
This site uses, for security reasons and to protect the transmission of confidential content, such as requests that you send to us as a site operator, an SSL or TLS encryption.
You can recognize an encrypted connection by changing the address line of the browser from "http: //" to "https: //" and the lock symbol in your browser line. If SSL or TLS encryption is enabled, the data you submit to us can not be read by third parties.
Information, blocking, deletion
You have the right to receive information on your stored personal data, their origin and recipient and the purpose of the data processing and, if necessary, a right to rectification, blocking or deletion of this data.
For further information on personal data you can contact us at any time at the address given in the imprint.
Opposition to advertising emails
The use of published contact details in the context of the imprint obligation for sending unsolicited advertising and information materials is hereby rejected.
The operators of the pages expressly reserve the right to take legal action in the event of the unsolicited sending of advertising information, for example through spam e-mails.
2 - Data collection on our website
Server log files
The provider of the pages automatically collects and stores information in so-called server log files, which your browser automatically transmits to us. These are:
Browser type and browser version
Used operating system
Host name of the accessing computer
Time of the server request
Used IP address
The basis for data processing is Art. 6 para. 1 lit. b DSGVO, which allows the processing of data to fulfill a contract or pre-contractual measures.
When using this general data and information, the Young Alliance Against Multiple System Atrophy, YAMSA, does not draw any conclusions about the person concerned. Rather, this information is required to (1) correctly deliver the contents of our website, (2) to optimize the content of our website and to advertise it, (3) to ensure the continued functioning of our information technology systems and the technology of our website, and (4) to provide law enforcement authorities with the information necessary for to enforce the law in the event of a cyberattack. This anonymously collected data and information is statistically evaluated by the Young Alliance Against Multiple Systems Atrophy, YAMSA, and also with the aim to increase the privacy and data security in our company, in order to provide an optimal level of protection for the personal data processed by us. The anonymous data of the server log files are stored separately from all personal data provided by an affected person.
Online forms or contact forms
The Young Alliance Against Multiple System Atrophy website, YAMSA, contains information that allows for quick electronic contact with us and direct communication with us, which is also a general address of the so-called electronic mail (e-mail address). If you send us inquiries via the contact form or e-mail, your information will be stored with us including the contact details you provided there for the purpose of processing the request and in case of follow-up questions. We will not share this information without your consent.
The processing of the data entered into the contact form is therefore exclusively based on your consent (Art. 6 (1) lit. DSGVO). You can revoke this consent at any time. An informal message by e-mail to us is sufficient. The legality of the data processing operations carried out until the revocation remains unaffected by the revocation.
The information you provide in the contact form will remain with us until you ask us to delete it, revoke your consent to storage, or delete the purpose for data storage (for example, after your request has been processed). Mandatory statutory provisions - especially retention periods - remain unaffected.
We offer you the option of subscribing to our newsletter to receive the latest information and promotions from the Young Alliance Against Multiple System Atrophy, YAMSA e.V. For this we need your email address. We use this to send you the newsletter. You can voluntarily give us your name. We use this to address you personally. The legal basis for data processing is your consent, which you have given us by ordering the newsletter and which you can revoke at any time with effect for the future, e.g. by email to: email@example.com.
3 - Plugins and Tools
Google Web Fonts
This site uses so-called web fonts, provided by Google, for the uniform representation of fonts. When you call up a page, your browser loads the required web fonts into your browser cache to display texts and fonts correctly.
To do this, the browser you use must connect to Google's servers. As a result, Google learns that our website has been accessed via your IP address. The use of Google Web Fonts is in the interest of a consistent and attractive presentation of our online services. This constitutes a legitimate interest within the meaning of Art. 6 para. 1 lit. f DSGVO.